For Geekwire’s Health Tech podcast, Lisa Stiffler (@lisa_stiffler) talks to Sanath Kumar Ramesh, whose son Raghav was born with an ultra-rare genetic disorder. As a software engineer, Ramesh is oriented toward problem-solving. So when Raghav’s doctors told the family there were no drugs to help the little boy, Ramesh decided to take action. He is now the founder and CEO of a nonprofit that facilitates trials of new drugs for rare diseases, including Raghav’s. Image by Matthias Süßen via Wikimedia Commons
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